06: The Individual Genome – Fate, Opportunity or Obligation?
Genome analysis predicts future illness. Can these future patients still influence how their illness will develop? Although we still don t know what consequences this kind of information will have, they will need to have a heightened awareness of health issues. Is it fair to expect citizens themselves to assume this responsibility? Will predictive genetic diagnostics become the new social medicine, distinguishing advantaged from disadvantaged people? Do individuals have to accept their own genetic make-up as fate? Does the knowledge about our genetic make-up create new opportunities? Or will monitoring one’s own risk profile become a social responsibility? People are already sharing their genomes on the Internet – so who still has the right not to know?
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Dr.in phil. Sigrid PILZ
Nursing and Patient Advocate, Vienna
| Studium der Erziehungswissenschaften und Psychologie, Universität Innsbruck | |
| 1985-2012 | Beamtin, Bundesministerium für Familien und Jugend als Leiterin, Abteilung für Internationale Familien- und Jugendpolitik |
| Lektorin, Institut für Erziehungswissenschaften, Universität Innsbruck | |
| 2001-2012 | Gesundheitssprecherin der Wiener Grünen, Grüne Gesundheitspolitikerin im Wiener Landtag und Gemeinderat |
| Seit 2012 Wiener Pflege-, Patientinnen- und Patientenanwältin |
